Date: 2017-06-28
This is a MGCK (MG consortium in Korea) web registry progression report.
Dataset retrieval: 2016-11
You can download dataset (.dump, .sql, .csv) and script files (.r, rmd) from here.
| SNUH | BRMH | KUAH | SMC | IUH | CAUH |
|---|---|---|---|---|---|
| 171 | 41 | 39 | 17 | 3 | 1 |
Summary
## onset2presentation presentation2entry entry2enrollment
## Min. :-26.000 Min. :-32.000 Min. :-23572.00
## 1st Qu.: 0.000 1st Qu.: 0.000 1st Qu.: 9.50
## Median : 1.000 Median : 1.000 Median : 25.00
## Mean : 8.125 Mean : 7.643 Mean : -50.54
## 3rd Qu.: 5.000 3rd Qu.: 3.000 3rd Qu.: 54.50
## Max. :261.000 Max. :228.000 Max. : 249.00
## NA's :5
## onset2dx onset2secgen
## Min. : 0.00 Min. : 1.00
## 1st Qu.: 1.00 1st Qu.: 3.00
## Median : 3.00 Median : 7.00
## Mean : 12.76 Mean : 20.88
## 3rd Qu.: 9.00 3rd Qu.: 17.00
## Max. :283.00 Max. :195.00
## NA's :1 NA's :229
Patients (pt_serial_no) in whom the time is < 0 (should be input error)
Time distribution
Number of patients (second row) across the range of MG composite score at enrollment (first row)
| 0 | 1 | 2 | 3 | 4 | 6 | 7 | 8 | 9 | NA’s |
|---|---|---|---|---|---|---|---|---|---|
| 107 | 5 | 5 | 9 | 11 | 1 | 2 | 2 | 2 | 128 |
MG composite scores are available in 161 visits in 145 patients.
Number of visits (MG composite score are avaiable) and corresponding number of patients.
| 0 | 1 | 2 | 4 | 5 | 8 |
|---|---|---|---|---|---|
| 127 | 140 | 2 | 1 | 1 | 1 |
When only the visits after 2014-01-01 were considered,
MG composite scores are available in 123 visits in 108 patients.
Number of visits (MG composite score are avaiable) and corresponding number of patients.
| 0 | 1 | 2 | 4 | 5 | 8 |
|---|---|---|---|---|---|
| 164 | 104 | 1 | 1 | 1 | 1 |
Changes of MG composite scores in patients whose MG composite scores are available more than once.
MGFA class are available in 346 visits in 259 pateints.
Number of visits (MGFA class is avaiable) and corresponding number of patients.
| 0 | 1 | 2 | 3 | 4 | 5 | 8 |
|---|---|---|---|---|---|---|
| 13 | 192 | 56 | 7 | 2 | 1 | 1 |
When only the visits after 2014-01-01 were considered,
MGFA class (or post-intervention status) is avaiable in 253 visits in 176 patients.
Number of visits (MGFA class or PIS is avaiable) and corresponding number of patients.
| 0 | 1 | 2 | 3 | 4 | 5 | 8 |
|---|---|---|---|---|---|---|
| 96 | 118 | 48 | 6 | 2 | 1 | 1 |
Change of MGFA class
Number of patients who achieved remission
Time to remission
Duration of remission
Number of relapse
Time to relapse
Number of crisis: 28
Number of patients who got at least one crisis: 20
Number of crisis (first row) and correponding number of patients
| 1 | 2 | 3 |
|---|---|---|
| 13 | 6 | 1 |
Time from onset to crisis (excluding cases in which time to crisis is longer than 60 months)
ICU stay (days) d/t MG crisis
## Min. 1st Qu. Median Mean 3rd Qu. Max.
## 0.00 7.00 12.00 14.91 22.75 38.00
Number of patients who got thymectomy for non-thymomatous MG: 5 Number of patients who got thymectomy for non-thymomatous MG: 55
Time from onset to thymectomy for non-thymomatous MG
Thymectomy: type of resection
For non-thymoma,
##
## transcervical_basic transcervical_extended
## 0 0
## transsternal_classic transsternal_extended
## 0 0
## transcervical_transsternal videoscopic_classic_VATS
## 0 1
## videoscopic_extended_VATET robot_surgery
## 0 2
## others
## 0
For thymoma,
##
## transcervical_basic transcervical_extended
## 0 0
## transsternal_classic transsternal_extended
## 22 10
## transcervical_transsternal videoscopic_classic_VATS
## 0 2
## videoscopic_extended_VATET robot_surgery
## 0 6
## others
## 1
Number of patients treated with iv methylprednisolone: 3 Number of patients treated with oral prednisolone: 153
Changes of oral prednisolone dose
Number of patients treated with immunosuppressive agents: 96
Number of patients (second row) in whom N (first row) different immunosuppressive agents were used in total
| 1 | 2 | 3 | 4 |
|---|---|---|---|
| 63 | 25 | 7 | 1 |
Use of immunosuppressive agents: proportion
Number of patients in whom the dates of start and end are both specified: 70
Side effects of immunosuppressive agents (0; no, 1; yes)
| 0 | 1 |
|---|---|
| 179 | 26 |
IVIG was treated in 51 occasions in 29 patients.
Number of IVIG use (first row) and corresponding number of patients.
| 1 | 2 | 3 | 4 | 8 |
|---|---|---|---|---|
| 20 | 3 | 3 | 2 | 1 |
Number of occasions in which side effects of IVIG were reported:
Plasmapheresis was used in 33 occasions in 29 patients.
Number of plasmapheresis (first row) and corresponding number of patients.
| 1 | 2 | 3 |
|---|---|---|
| 26 | 2 | 1 |
Side effects of PE (0=no; 1=yes)
## 0
## 33
Follow-up duration: from first visit (enrollment) to date close
## Min. 1st Qu. Median Mean 3rd Qu. Max.
## -3.0 0.0 0.0 204.1 8.5 23610.0
When only the patients with 0 <= fu duration <= 60 months were considered,
MGFA class at the end of f/u
MG composite scores at the end of f/u
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